Parents

Do you have a child who needs further testing or who has a disorder identified through newborn screening? The Newborn Screening Program can provide support to you and refer you to programs that can be of assistance for you and your family. Please see the programs listed below that may be able to help you.

Coordinated Services Program

Provides services and resources that support coordinated management of specific chronic health conditions. Services include:

  • Metabolic Food

Provides formula and low-protein modified food products for individuals with Phenylketonuria (PKU) and Maple Syrup Urine Disease (MSUD).

  • Multidisciplinary Clinics

Services that provide access to pediatric specialty care and enable families to see many different medical providers and health care professionals in one place at one time. The eight types of clinics available through SHS include:

  • Asthma
  • Autism
  • Cleft Lip/Palate
  • Developmental Evaluation
  • Diabetes
  • Metabolic Disorders
  • Myelodysplasia
  • Neurodevelopmental Coordinated Care

Financial Coverage Program

This program helps pay for medcial services for eligible chidlren, youth, and young adults who require specialty care to diagnose and treat their chronic health conditions. Services Include:

  • Diagnostic Testing and Evaluation

    Provides coverage for services that promote early diagnosis of Special Health Services - eligible medical conditions.
  • Treatment

Provides coverage for services to children with chronic health conditions who meet medical and financial elgibility criteria.

  • Russell Silver Syndrome

Provides coverage for growth hormone treatment and medical food.

Newborn Screening and Follow-up Program

The goal of this program is to identify conditions at an early age when treatment and intervention can prevent health problems, support early development, and save lives. Newborn screening consists of three simple tests:

  • Blood Spot

Includes laboratory screening tests and follow-up services for nearly 50 genetic/metabolic conditions to identify infants that may be at risk for disorders included in the testing panel.

  • Hearing

Screening tests using specialized equipment are conducted to identify newborn infants who are deaf or hard of hearing so appropriate intervention services can be started as soon as possible.

  • Critical Congenital Heart Disease

Screening that checks newborns oxygen levels to help identify serious heart defects.

Children with Special Health Care Needs System Enhancement Program

Improves health outcomes of children with special health care needs (CSHCN) by advancing a quality, comprehensive system of care that promotes the healthy development and well-being of children and their families. Six core outcomes that describe the system of services for CSHCN include:

  • Family Professional Partnership

  • Medical Home

  • Adequate Health Insurance

  • Early and Continuous Screening and Surveillance

  • Easy to Use Services and Supports

  • Transition to Adult Health Care